Because access to quality care saves children’s lives!
Because children and teenagers with cancer deserve the best treatment – no matter where they live!
Because together, we are stronger!
The mission of ExPO-r-Net was to reduce current inequalities in childhood cancer survival and healthcare capabilities in different EU Member States by building a European Reference Network for Paediatric Cancer (ERN-PaedCan) .
The following goals underpin the mission of the project:
- Linking pre-existing hubs of coordination in childhood cancer treatment and care
- Enabling treatment of children and young people with cancer in a Member State other than the Member State of affiliation
- Empowering patients affected by complex or rare disease to choose and be reimbursed by public and private healthcare providers across the EU
- Improving access to high-quality healthcare for all young people and children with cancer
ExPO-r-Net achieved its ambitions goals by:
- Building a clear roadmap to approved expert referral sites and tumour advisory boards for healthcare providers, incorporating expertise from all over Europe and integrating all existing information to help patients access the best possible information, treatment and care.
- Strengthening cooperation between patients, professionals and healthcare authorities (starting from the existing networks)
- Adopting ICT/eHealth solutions facilitating movement of information and knowledge rather than patients whenever possible.
Quick Definition: What is a European Reference Network?
European Reference Networks (ERNs) are a feature of the EU Directive on Cross-Border Healthcare aiming to unite the best specialists from across Europe to tackle complex or rare medical conditions that require highly specialised healthcare and a concentration of knowledge and resources.