EU Legislation

ExPO-r-Net was co-funded by the EU Health Programme in the framework of testing the implementation of European Reference Networks – a feature of Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare.

What is a European Reference Network (ERN)

ERNs are set to bring together hubs of coordination from different Member States in disease areas where expertise is rare.

This concentration of resources and expertise will help to:

  • Provide access to the best possible information, treatment and care to patients whose conditions require highly specialised knowledge or resources;
  • Improve diagnosis and care in the concerned medical domains;
  • Maximise the speed and scale of diffusion of innovations in medical science and health technologies.

The strategic relevance of ExPO-r-Net in this context consists in generating the information on how ERNs can be successful and providing an operational framework for a Paediatric Oncology ERN to truly improve standards of care for children and young people with cancer.

Other EU projects

ExPO-r-Net has been designed to be compatible with previously initiated EU projects in this field: ENCCA EPAACPanCareSurFupEUROSARC INTREALL ASSET.

Abbreviations used in the project:

  • ECRC: European Clinical Research Council of Paediatric Oncology – SIOPE Clinical Trial Council
  • ECTG(s): European Clinical Trial Groups
  • ERN(s): European Reference Network(s)
  • CBHC: Cross-Border HealthCare
  • ICT: Information & Communication Technology
  • PMT: Project Management Team
  • PO : Paediatric Oncology
  • STS: Soft Tissue Sarcoma
  • TB(s): Tumor Board(s)
  • VRT: Very Rare Tumours
  • WP: Work package


CCRI - Children’s Cancer Research Institute, Zimmermannplatz 10, 1090 Vienna, Austria

Project Coordinator

Professor Ruth Ladenstein

Project Manager

Barbara Brunmair, Priv. Doz. Dr.

Dissemination Management Team

SIOP Europe (SIOPE), the European Society for Paediatric Oncology 

Address: Av. E. Mounier 83, 1200 Brussels, Belgium