Elected ePAG representatives for the paediatric cancer ERN

EURORDIS (Rare Diseases Europe) led the process of setting up dedicated Patient Advocacy Groups (E-PAGs) for each future ERN to facilitate patient involvement therein.

Following the invitation to patient organisations to express their interest and the subsequent elections, the ExPO-r-Net community welcomes our Childhood Cancer International Europe partners as representatives in the Paediatric Oncology ePAG:

  • Anita Kienesberger, Austrian Childhood Cancer Organization (├ľsterreichische Kinder-Krebs-Hilfe)
  • Luisa Basset, Federaci├│n Espa├▒ola de Padres de Ni├▒os con C├íncer (FEPNC)
  • Lejla Kameri─ç, Heart for kids with cancer in FBiH (Srce za djecu koja boluju od raka u FBiH)

More information: