EURORDIS (Rare Diseases Europe) led the process of setting up dedicated Patient Advocacy Groups (E-PAGs) for each future ERN to facilitate patient involvement therein.
Following the invitation to patient organisations to express their interest and the subsequent elections, the ExPO-r-Net community welcomes our Childhood Cancer International Europe partners as representatives in the Paediatric Oncology ePAG:
- Anita Kienesberger, Austrian Childhood Cancer Organization (Österreichische Kinder-Krebs-Hilfe)
- Luisa Basset, Federación Española de Padres de Niños con Cáncer (FEPNC)
- Lejla Kamerić, Heart for kids with cancer in FBiH (Srce za djecu koja boluju od raka u FBiH)
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