ExPO-r-Net Coordinator Prof Ruth Ladenstein provided invaluable leadership to SIOPE’s International Childhood Cancer Day event 2015, dedicated this year to Data Protection.
On 3rd February 2015, more than 80 participants from all over Europe debated the projected consequences of the new EU Data Protection Regulation on childhood cancer research. The SIOPE event ‘Balancing Personal Data Protection and Research Progress: The Case of Childhood Cancer’ took place at the European Parliament in Brussels, giving a unique opportunity for all relevant stakeholders to provide their perspectives on this controversial subject.
Hosted and chaired by MEP Glenis Willmott, a long-lasting supporter of SIOPE, the event gave visibility to the enitire European childhood cancer community, deeply concerned by the fact that the proposed EU Data Protection Regulation – whilst aiming to protect patients – may unintentionally hamper biomedical research for children or prevent it altogether.
On this occasion, childhood cancer survivors and parents, healthcare professionals and representatives from the European institutions called for a harmonised Data Protection Regulation under EU legislation without Member State exemptions, to avoid fragmentation and to enable continued progress in the fight against cancer.
Prof Ruth Ladenstein has been key in driving the programme of this important event and provided priceless support in raising awareness on the topic of Data Protection – key for SIOPE’s agenda.
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