The ExPO-r-Net Project was presented at the recent European Network for Cancer Research in Children and Adolescents (ENCCA) General Assembly & European Clinical Research Council (ECRC) meeting in Brussels. Prof Ruth Ladenstein – Project Coordinator for both ENCCA and ExPO-r-Net – outlined the project aims and background.
Based on the recent the EU Cross-border Healthcare Directive and the European Union’s committment to create European Reference Networks, the project team is in the ideal situation to interact with the ECRC stakeholder community as previously identified by SIOPE and ENCCA. The close collaboration will facilitate to identify in a real bottom up process the pre-existing collaborative structures within European Clinical Trial Groups and create in a common effort a visible Paediatric Oncology European Reference Network. This will be a major activity over the next two years.
Logistics and technical solutions for cross-boarder paediatric oncology tumour boards, efforts to raise standards of care, the next level development of the Survivorship Passport as well as the focus on the very rare tumour entities will certainly help to increase the assets of the paediatric oncology community in Europe.